Navigating Privacy and Security in Consumer Genetics
Kate Black (23&Me)
23andMe often sits at the intersection of emerging and dynamic trends, including: providing and empowering individuals through genetics, exploring genetic research for personalized medicine, challenging and conflicting legal requirements, and risks in cyber security and surveillance.I will provide an overview of how we navigate these challenges, the most common privacy and security issues, and some practical approaches to protecting sensitive health information online.
About Kate Black
Kate joined 23andMe in 2015 in the newly created role of privacy officer and corporate counsel. Her responsibilities include: developing, implementing, overseeing, and maintaining comprehensive privacy and data use policies, practices and procedures for the company. Prior to 23andMe, Kate spent two years with the U.S. Department of Health and Human Services’ Office of the National Coordinator for Health IT (ONC) where she was responsible for developing and updating national privacy and security requirements. Before ONC, she was staff attorney for the Health Privacy Project at the Center for Democracy and Technology (CDT). Kate holds a Juris Doctorate from The George Washington University and received a bachelor of science degree in health sciences from The Florida International University.
23andMe, Inc. is the leading personal genetics company. Founded in 2006, the mission of the company is to help people access, understand and benefit from the human genome. 23andMe has over 850,000 customers worldwide with over 80 percent consented to participate in research. 23andMe, Inc. is located in Mountain View, CA. More information here.